I recently wrote a post about GHD and dwarfism, in general. I seem to have somehow deleted it without meaning to. Perhaps it’s for the best, as my son who has GHD has told me he prefers to tell or not tell people – not have me do it. Even though it feels good to smack rude people with facts, I do need to learn to respect this.
So here are the pertinent bits of info I really wanted to share:
While I was in the process of adopting one son, another (bio) son was diagnosed with growth hormone deficiency (GHD). This is a rare and expensive to treat medical condition. So if one son had been in the other’s shoes, he would have been classified as a “special needs” kid, even though he was developing normally in all ways except height.
I have asked myself – would I have considered adopting him? Or would I have missed out on being his Mom? It’s painful to even contemplate…he is beyond important to me. I could not love him any more – or I’d burst. So…it’s a question worth putting “out there.”
GHD, once called proportional dwarfism, is treatable. Most forms of dwarfism are not…but with most forms of dwarfism, intellectual development is expected to be normal. And most kids grow up to be independent adults.
It’s important to take care with what we say to or about children who seem different in some way. It’s not about so-called political correctness or coddling them…it’s about basic human decency. If we make invasive, presumptuous comments to or about children, that is how we are teaching them to behave. And no one, should ever be judged by their size…because…you just never know….